Duchenne muscular dystrophy (DMD) – it affects primarily boys and is the leading genetic killer worldwide. More than 1 in every 3500 are born with it. Generally speaking, children are diagnosed by the time they are 3 or 4 yrs old. Their muscles don’t rebuild meaning by the time they are 9 or 10 they are in a wheel chair. They usually don’t make it past their teen years because their hearts or diaphragms give out. As of now, it is 100% fatal.
Now for the good news! Organizations like CureDuchenne are making huge strides in realizing a cure. Now CureDuchenne acts as a venture philanthropist so to speak to give promising biotech companies the seed money they need to attract the larger pharmaceutical companies. ALL of the companies and researchers CureDuchenne has funded have been successful and a life saving treatment is actually within sight. Very exciting!
So, how do they raise money and awareness to find a cure? Through super cool events like the Climb to Cure Duchenne! Last year a group of 12 of climbed Mt. Rainier. They raised $170,000 that went directly to research!
Now, how are we going to top that? By opening it up to everyone. Our friend, Sean Marshall is organizing different climbing groups from around the country to pick a peak and climb for a cure. Micah and I are joining him and many others, to climb Mt. Shasta, 14,179ft. June 19&20 if you feel compelled please donate and pass this link on to everyone you know. We thank you for your support to help raise money to cure muscular dystrophy. We are excited to be able to climb such a great mountain and also do it for a cause.
Here is our link:
http://www.firstgiving.com/mtshastacrusaders
If you have a group that would like to climb to cure Duchenne please email or call Sean and he will get you all the info you need.
Sean Marshall- 949-872-2552 or sean@cureduchenne.org
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