Sunday, February 28, 2010

Cure Duchenne Muscular Dystrophy

Duchenne muscular dystrophy (DMD) – it affects primarily boys and is the leading genetic killer worldwide. More than 1 in every 3500 are born with it. Generally speaking, children are diagnosed by the time they are 3 or 4 yrs old. Their muscles don’t rebuild meaning by the time they are 9 or 10 they are in a wheel chair. They usually don’t make it past their teen years because their hearts or diaphragms give out. As of now, it is 100% fatal.

Now for the good news! Organizations like CureDuchenne are making huge strides in realizing a cure. Now CureDuchenne acts as a venture philanthropist so to speak to give promising biotech companies the seed money they need to attract the larger pharmaceutical companies. ALL of the companies and researchers CureDuchenne has funded have been successful and a life saving treatment is actually within sight. Very exciting!

So, how do they raise money and awareness to find a cure? Through super cool events like the Climb to Cure Duchenne! Last year a group of 12 of climbed Mt. Rainier. They raised $170,000 that went directly to research!
Now, how are we going to top that? By opening it up to everyone. Our friend, Sean Marshall is organizing different climbing groups from around the country to pick a peak and climb for a cure. Micah and I are joining him and many others, to climb Mt. Shasta, 14,179ft. June 19&20 if you feel compelled please donate and pass this link on to everyone you know. We thank you for your support to help raise money to cure muscular dystrophy. We are excited to be able to climb such a great mountain and also do it for a cause.
Here is our link:
If you have a group that would like to climb to cure Duchenne please email or call Sean and he will get you all the info you need.
Sean Marshall- 949-872-2552 or

Monday, February 15, 2010

Hope everyone had a good Valentine's Day

We had a great Valentine's Day. We went to church in the morning and then came home and some pb and j's and took naps...a perfect day!

Well before the naps the girls wanted to bring their neighbor friends the valentines goodies they put together. So we stopped by each house and dropped them off. We also made some for our, what the girls call "The New Neighbors" even though they've been there for a while. We dropped those off and chatted for a bit. They are super nice and she has 3 girls of her own, cool huh! Anyways later that night they dropped off this wonderful V-day cake for us. It was super nice of them, thank you.

For dinner we had pink pancakes, yum yum, and then the cake.

Happy Valentine's Day!

Happy Birthday to me...

Okay my birthday was on the 2nd, yes groundhogs day, and no I don't know if he saw his shadow or not. I found the pictures and though hey this is my blog and even if its way late I can still post it. I got headphones for my phone from Connor and Chelsea and the fam pooled together $ for my hot yoga that I've been dying to start up again. In fact tonight I did my first one for the month! Thank you everyone!

Hang loose!!